This spring I started a new video series, to be published quarterly, highlighting the amazing things that students across the globe are doing. For my summer video I had the opportunity to do an interview with the most amazing little girl from New Jersey, and I’m so excited to share it with you now!
Ella was diagnosed with NF when she was 5 years old. Since then, she has undergone over 17 sedated MRI’s, 16 months of weekly chemotherapy treatments, countless tests, 100 needle sticks, total loss of vision in her left eye, ADHD and learning differences, and so much more. She is stable now but with NF you never know what lies ahead. Even with all of the challenges she faces, Ella stays positive and finds strength by doing random acts of kindness. She has hosted a Christmas party for kids of Hurricane Sandy and another for our military youth, held three community service events where volunteers made hats and headbands for kids undergoing treatment and delivered food and needed items to the homeless in Philly to name a few. Ella, along with her many supporters, also has raised over $32,000 in the past 4 years for research. She is an inspirational little girl!
Shortly after diagnosis in 2011, Ella began writing children’s books and just published her first one. She is a very spunky, ambitious young lady with many dreams and is determined to let nothing hold her back, not even NF! Ella wants to let other children that face challenges know that you can overcome any obstacle if you put your mind to it. She is planning an east coast book tour for this summer. During which, she plans to perform random acts of kindness along the way.
You can view my complete interview with Ella here, which is totally worth it because there is no way I can put her spunk and energy into words on a page. If you are interested in supporting her work, you can visit her Go Fund Me page here.